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In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."

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Alzheimer’s disease is not normal forgetfulness as we age. Instead, it is a specific form of mental decline. And according to the Alzheimer’s Association it accounts for nearly 80 percent all dementia cases. Natasa Dragicevic, MD, PhD., behavioral neurologist and Alzheimer’s disease specialist with Renown Institute for Neurosciences, weighs in on diagnosing it and the importance of early medical action. How to Diagnose Alzheimer’s Disease In general, the signs of Alzheimer’s disease occur slowly, getting worse over time. For example, forgetfulness is a daily search – for shoes, keys and other misplaced items. Not only is memory affected, but also speech patterns and behavior. There is no single test for Alzheimer’s disease. “Specifically, a neurologist should be the one to diagnose Alzheimer’s disease given differences in presentation,” clarifies Dr. Dragicevic. “And ideally a behavioral neurologist (Alzheimer’s sub-specialist) will be managing the treatment,” she adds. Brain Imaging Diagnosing Alzheimer’s disease involves multiple approaches and medical providers. In short, medical history is reviewed along with a physical exam, lab tests and other diagnostic testing. “A medical workup includes a variety of tests. These include MRI and other brain imaging, as well as neurological and psychological testing. Furthermore, a lumbar puncture is performed to look for markers of the disease,” she states. What Causes Alzheimer’s disease? Although no one knows the cause, researchers think many factors play a role. Uncontrollable risk factors include your genetics and having a family member with the disease. However, the controllable risk factors include: reducing the risk of head injury and keeping your heart healthy. It’s important to realize that high blood pressure, high cholesterol, stroke and diabetes play a role in brain health. Blood loss to the brain causes vascular dementia, leading to long-term blood vessel damage. Symptoms of Alzheimer’s disease Generally speaking, the signs of this disease differ in each person. Yet noticeable behaviors include: • Losing the way to familiar places • Forgetting to pay bills • Trouble finding the right words when talking • Repeating questions • General confusion • Social withdrawal Alzheimer’s Disease – Benefits of Early Diagnosis Equally important, spotting Alzheimer’s disease early allows more time to benefit from medications and possible clinical trials. Likewise, nutrition and exercise changes can be made, increasing blood flow to the body, and perhaps delaying symptoms. Early diagnosis also allows for personal health decisions and quality-of-life conversations to take place.   According to the Alzheimer’s Association, these benefits include: 1. Medical advantage 2. Emotional and social comfort 3. Time to plan ahead 4. Cost savings A Brain Supporting Lifestyle “At the present time, treatment is limited,” explains Dr. Dragicevic. “Usually Alzheimer’s is a progressive ongoing disease – any management at this time is purely symptomatic.” However, she states the following lifestyle changes can help support brain health: • New hobbies such as painting, pottery, music classes or learning a new language • Crosswords, puzzles and playing games, such as Scrabble • Brain challenging mobile apps, such as Luminosity • 30-45 minutes of mild to moderate physical activity per day, such as walking • Eating a Mediterranean diet (primarily plant based foods)

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Losing a loved one is a devastating experience that can leave a permanent mark on one's heart. It is a journey that's difficult to navigate, but with the help of family and friends the process can be eased. For the Meinzer family, the healing process was made a little easier because of the exceptional care their loved one, Susie, received at Renown. In the fall of 2022, Susie Meinzer, a breast cancer survivor, suffered a fatal stroke. The care provided by Renown’s team was a reminder of the important role healthcare workers play in the lives of their patients and families. “We just knew, the doctors, the nurses, everyone… we knew that we didn’t have much time left with Susie,” said Ken Meinzer, Susie’s widower. Humanizing Healthcare The compassion provided by the care team at Renown made a significant impact on the Meinzer family. They ensured that Susie's last moments were as comfortable as possible, and their kindness and empathy have stuck with the family since. Dr. William Graham, pulmonologist with Renown Health, was among the many healthcare workers who provided care to Susie. "It was hard enough to lose her, and we ask ourselves, ‘Why?’ a lot, but the compassion we received from Dr. Graham made it a little bit easier,” said Ken. “One night he sat with us for over an hour, just grieving with us." This act of kindness made a profound impact on the family. “As an ICU doctor, I try not only to care for my patients, but also for their families,” said Dr. Graham. “Ken and his family displayed such sincerity, compassion and love for Susie and one another. They are just wonderful people; the kind of people that inspire me to be the best doctor possible.” A Family Legacy In gratitude for the exceptional care Susie received, the Meinzer family, including Ken and his three daughters, Melissa, Nicole and Kyra, decided to donate to Renown Health Foundation. Their gift is a beautiful reflection of their love and devotion to Susie. “The donation was a way to say thank you, and a way to support the healthcare workers who continue to make a difference in the lives of patients and families every day,” said Ken. "The nurses in Renown’s ICU went above and beyond. They were a constant source of comfort and support for our entire family," said Melissa Meinzer-Benson, Ken and Susie’s eldest daughter. This was not the first time the family had experienced exceptional care at Renown. Ken and Susie had both undergone cancer treatment the previous year. Susie was diagnosed with breast cancer and had recently completed her treatment before her stroke, while Ken was treated for neck cancer. Dr. Abhinand Peddada, oncologist with Renown Health, led both their care teams, demonstrating a deep dedication to their well-being throughout their treatments. “I am grateful and humbled by the trust that Mr. and Mrs. Meinzer placed in Renown and me for their care in difficult times,” said Dr. Peddada.” Both Ken and Susie deeply appreciated Dr. Peddada’s care for them throughout their respective battles with cancer. The Meinzer family, who own Pinnacle Heating and Air Conditioning in Reno, are known for their commitment to giving back to the community. Melissa is a Veteran and has spoken about the importance of supporting others in any way possible. Susie instilled in Melissa and her sisters a spirit of compassion from an early age, and they have continued to donate to charitable causes throughout their lives. “She was such a force of inspiration, compassion and love. She was aways caring for others,” said Kyra, Ken and Susie’s youngest daughter. Susie was a beloved member of the Oak Community Church. It was there that she spent many Thanksgivings alongside her daughters, volunteering to serve meals to those in need. Charity work was a passion for Susie, and she always found ways to help those around her. She was a shining example of the importance of supporting your community and making a positive impact on the world.

Read More About Why I Give: The Meinzer Family’s Story

A wedding is a big day for the wedding couple, but it’s also special for loved ones. A patient at Renown, Ken, got to take part in his daughter’s special day as her wedding plans changed to accommodate his medical condition. Grab some tissues and read how Renown’s team of compassionate caregivers and chaplains planned a wedding in Fianna’s Healing Garden. Ken was hospitalized at Renown Regional Medical Center where he was battling a lung problem – which was unrelated to COVID-19 – and his condition worsened rapidly on Wednesday, Aug. 12. His family made the decision to transition him to palliative care, which helps patients near the end of their lives remain comfortable, while supporting their dignity and quality of life.  Ken’s medical condition altered wedding plans for his daughter, Chandra, and her fiancé, Tyler, who were planning to tie the knot later in 2020. Chandra wanted her father there, but knew he could not leave the hospital. That’s why Chandra’s sister, Heather, approached Ken’s care team with a request to have a small wedding ceremony at the hospital.  Planning the Wedding A member of Ken’s care team, Amy Heston, registered nurse (RN), began planning how the wedding could be held outdoors in Fianna's Healing Garden in the E. L. Wiegand Pavilion, which was donated by the E. L. Wiegand Foundation.   In 24 hours, Amy planned a wedding ceremony with the help of her colleague, Breyanna Aufiero, RN; the Renown Spiritual Care team; and nursing leaders on the coronary intensive care unit (ICU). Together, they decorated the aisle in the garden with flowers and battery-operated candles. They also made a sign for Ken’s hospital bed, which read, “Father of the Bride,” and crafted a bow tie for him to wear for the special occasion.  With visitor restrictions in place at the hospital due to coronavirus (COVID-19), having the wedding outside in the Healing Garden allowed for more members of Ken’s family to attend including his wife, Charlotte, and his dog, Bella.   Every step in planning the wedding required thoughtful and thorough care coordination so Ken could participate. His breathing was supported by oxygen and special arrangements were made to transport the oxygen tanks he needed to take part in his daughter’s wedding. Amy worked with respiratory technician, Kasey Benfield, and critical care technician, Ruben Duckworth, to ensure Ken’s oxygen needs were met using portable machines.  Celebrating Love and Life Together Ken’s team of caregivers bathed him and shaved his face so he could look and feel his best for the ceremony. They put on his bow tie, covered his bed in decorations and his favorite blue, flannel blanket, and wheeled his bed outside for the ceremony.  Renown associate chaplains Terri Domitrovich and Susan Palwick coordinated music and performed the ceremony for Chandra and Tyler on Thursday, Aug. 13, 2020. The bride and groom shared their first dance in the garden and Ken’s care team provided water and treats to give the family a full wedding experience.   Shortly after the ceremony, Ken passed away. This wedding provided Ken and his family meaningful memories for their big life-changing moments as they celebrated and said goodbye.  “Seeing Ken surrounded by family he never would have gotten to see again while in the hospital, watching him get to share a father-daughter dance with Chandra on her wedding day, and having him tell me that this day meant more to them than we would ever know were some of the most moving moments I’ve witnessed as a nurse,” Amy said. “I am so thankful for the team we have here. I know that this beautiful day wouldn’t have happened without the help of every single person who gave their time, money, creativity and passion to make it a day to remember.”

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The Recreation Therapy Alumni Program is a new addition to Renown Rehabilitation Hospital’s current programs. After daily hospital physical therapy ends, it is an opportunity for other adventures. Shaun Stewart, CTRS (Ceritified Therapeutic Recreation Specialist), tells us about the new Renown Alumni Recreation Therapy Program, its partnership with the City of Reno and upcoming events. It’s no secret that being active and social supports a satisfying, happy life. With this in mind, the Renown Alumni Recreation Therapy Program reinforces this idea. Its goal is to help patients experience the energy, teamwork and commitment that sports and recreation provide beyond the hospital walls. “We are happy to partner with the City of Reno’s adaptive and inclusion programming to create an active community of adaptive sports participants. There are many options for outdoor recreation in our area. This program looks to share these opportunities with those with a traumatic spinal cord injury,” says Shaun. April Wolfe, CTRS, with the City of Reno adds, “The program’s main objective is to empower individuals living with spinal cord injury to live and recreate independently in the community. We also want them to enjoy the activities, improving their emotional and physical well-being by taking part in the Renown Alumni Recreation Therapy program.” First Successful Therapy Event On Aug. 27, 2020, the recreation therapy program’s first event was an introduction to adaptive mountain biking. Eight participants enjoyed a morning of adaptive biking thanks to a grant in partnership with the City of Reno. “Getting back to an active leisure lifestyle following injury can increase your quality of life both socially and physically,” explains Shaun. “It was great to be outside with people of all abilities enjoying the beautiful Nevada sunshine.” We encourage patients of all abilities to develop active skills, make lasting friendships and, of course, have a blast. Certainly any activity is possible with adaptive equipment and a motivated attitude. Future Recreation Therapy Events Below are the details for the next event. Event: Introduction to Wheelchair Rugby Learn the rules of the sport and play with local athletes. When: Sunday, Nov. 1, from 2 – 5 p.m. Where: Evelyn Mount Northeast Community Center, 1301 Valley Rd., Reno, NV 89512 Cost: Free RSVP: Shaun.Stewart@renown.org or 775-982-3612 by Tuesday, October 26, 2020 This event has a 10 participant limit, following six feet distancing guidelines. Please bring a mask to wear. In particular, this will be a learning event and no scrimmages will occur Rugby wheelchairs will be provided. Please RSVP, to ensure the reservation of the appropriate equipment. In case you cannot attend this event, please look for upcoming events which will include adaptive archery, skiing and scuba diving. Renown Rehabilitation Hospital | 775-982-3500 Renown Rehabilitation Hospital is the region’s only hospital with certification by the Commission on Accreditation of Rehabilitation Facilities (CARF). It is certified for: Comprehensive Integrated Inpatient Rehabilitation Program Stroke Specialty Program Medical Rehabilitation Case Management Take a Virtual Tour

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Read about Jordan Stiteler, a local mom who says the Healthy Nevada Project provided insights into her family’s genetic makeup — and the likely cause of her dad and great grandfather’s deaths. Now she is changing her life due to her new diagnosis of familial hypercholesterolemia, which will allow her to take steps toward preventing the same fate. Jordan Stiteler’s dad died suddenly of a stroke nearly ten years ago — at only 45 years old. His grandfather died at age 40. Now through the Healthy Nevada Project’s no-cost genetic testing, she is closer to understanding why that may have happened. And she can take proactive steps to prevent the unhealthy symptoms that often lead to a stroke and heart problems. After getting her Geno 2.0 by National Geographic ancestry report, Stiteler got a call from Renown Institute for Heart & Vascular Health Cardiologist and Renown IHI Director of Research, Dr. Christopher Rowan. “They told me that I have FH, which is familial hypercholesterolemia,” she said. “I have genetically very high cholesterol because I have a non-functioning gene that doesn’t get rid of my cholesterol like a normal body would.” Familial Hypercholesterolemia: Simple Life Changes Dr. Rowan told Stiteler it is curable with medication and a change in lifestyle. Stiteler has embraced healthy lifestyle changes by exercising more and eating healthier. “It is so important. Being a mom, I think you have so much more to live for. Having this information has changed my life.” Stiteler feels confident FH affected her Dad. “It is helping my family realize that we need to get tested,” she said. “There were big milestones that my Dad missed. He didn’t get to see either of us get married or have our children. That was huge.” She has become passionate about sharing the need to join the Healthy Nevada Project as her way of helping to prevent other families from possibly going through what she and her family did with the early loss of her Dad. In addition to FH results, the Healthy Nevada Project is returning clinical results on BRCA 1/2 (hereditary breast and ovarian cancer) and Lynch syndrome (colorectal and endometrial cancer) to consenting study participants. To sign up for the Healthy Nevada Project, go to HealthyNV.org. Join the Healthy Nevada Project Recruitment for phase two is still open. In addition to opting in to receive clinical results, participants receive National Geographic’s Geno 2.0 ancestry app at no cost. They also have the chance to pick an additional app for health and wellness after completing a follow-up survey. Learn More or Sign Up

Read More About The Healthy Nevada Project Changed My Life: A Local Mom's Story

University of Nevada, Reno student Khoa Le was paralyzed in 2010 after a longboarding accident. Through physical therapy, a positive attitude and sheer will, Le is walking again. This weekend, Le will walk across the commencement stage to accept his college diploma. “Walking around on my own power is just the greatest feeling,” says Khoa Le, a senior at the University of Nevada, Reno. Just after finishing summer school at the university in July 2010, his whole life changed within seconds after stepping on a longboard skateboard for the first time. He lost control of the board and hit the curb, causing paralysis on the left side of his body. His journey to recovery began at Renown Health Physical Therapy & Rehab. His physical therapist, Dina Barry, says he never complained once in four years. “I started seeing Khoa in April 2011, and we worked for four years together,” says Barry, a lead physical therapist at Renown. “Everything I’ve ever asked him to do, he does. Le is a hard worker, is continuously optimistic and smiling, and I think that is why he’s accomplished what he has.” Le plans to pursue a career as an information systems manager.

Read More About Perseverance and Physical Therapy Help UNR Student Walk Again