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Quality of End-of-Life Care for Children with Cancer: A COG Groupwide Observational Study

Short Title: ALTE24C1

Enrollment Status: Recruiting

NCT #: NCT07412002

Specialty Area: Pediatric Hematology/Oncology

Conditions Studied: Childhood Hematopoietic and Lymphatic System Neoplasm; Childhood Malignant Solid Neoplasm

Age Groups: Adult; Older Adult

Phase: Not Applicable

Study Information

Summary / Purpose

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Study Type: Observational

Accepts Healthy Volunteers: No

Who Can Participate

Eligibility Criteria:

Adults 18+ years of age
A parent, legal guardian, or caregiver (biological or non-biological) of a child who was enrolled on APEC14B1, Project:EveryChild (Stratum 1) and who passed away from a cancer/oncologic condition before 18 years of age
Familiar with the care the child received during the last month of their life

What's Involved

Participation in the study will include:

A review of the child's medical records by the study team
Completing a survey about the care your child received
Taking part in an interview, if you choose to

Principal Investigator

Seema Rao, MD

Pediatric Hematology-Oncology

(775) 982–5437

Renown Children's Hematology and Oncology

View Provider

Additional Information

Location: Renown Health, Office of Clinical Research
Address:

1500 E 2nd St. Reno, NV 89502

General Research: 775-982-3646
Oncology Research: 775-982-5050
Email: Renown-CRD@renown.org

Complete Study Details: https://clinicaltrials.gov/study/NCT07412002

Disclaimer: This listing gives you general information about the study and isn't part of the official consent process. If you decide to learn more, the research team will talk with you and check if you meet any additional requirements to join the study.